About Lay Members
The role of a Lay Member is to provide an independent, objective, external and effective lay/public view to the Advisory Groups, and to work with other members of the Advisory Group to agree priorities and the work programme, develop and review clinical and other policies and promote more effective interaction with other stakeholders, including patients and patient groups. They will be a full and active member of the Advisory Group.
Lay Members must be committed to public service and to NHSBT’s purpose. They must have the courage to speak out and challenge, working consistently with fellow members from across the organ transplantation community and communicating confidently both within and outside the organisation.
Lay members are not clinicians and will not become involved with clinical decisions about individual patients. If a patient or a family member has a concern with a clinical decision, then they should raise this with the clinician concerned in the first instance and, if not satisfied, contact the hospital involved. Patients declined for transplantation may ask for a second opinion.
Organ Donation and Transplantation
Organ Donation and Transplantation (ODT) is a directorate within NHS Blood and Transplant (NHSBT) managing organ donation and retrieval from deceased donors across the UK. The Solid Organ Advisory Groups bring together clinicians (surgeons, physicians, recipient transplant coordinators), commissioners and members of the UK Departments of Health and members of NHSBT, not only to advise on selection and allocation policies but also to promote organ donation and transplantation, monitor outcomes and ensure good governance.
Each Solid Organ Advisory Group has appointed 2 members to each of the Advisory Groups; the appointment of these Lay Members will complement and not replace the work with patients and patient groups. The appointed Members are:
- Bowel Advisory Group: Mr Craig Jones, Prof Elizabeth Murphy
- Cardiothoracic Advisory Group: Mrs Margaret Harrison
- Kidney Advisory Group: Mrs Kathleen Preston, Mrs Julia Mackisack
- Liver Advisory Group: Mrs Lynne Vernon, Mrs Sarah Matthew,
- Pancreas Advisory Group: Mrs Julia Mackisack, Mrs Hazel Bentall
- National Retrieval Group: Ms Mellissa D`Mello
- Research, Innovation & Novel Technologies Advisory Group: Prof Elizabeth Murphy, Hazel Bentall
- National Organ Donation Committee: Mrs Margaret Harrison, Mr Craig Jones
The Chairs of these groups also meet in an overarching forum – the Chairs of the Advisory Groups Committee.
There are in addition 3 other Advisory Groups:
- National Retrieval Group (NRG)
- National Organ Donation Committee (NODC)
- Research Innovation and Novel Technology (RINTAG)
The Advisory Groups meet on a biannual basis, with working groups meeting more frequently to discuss specific issues. The Lay Members will be allocated to an Advisory group and may be asked to serve on their allocated Advisory Group’s working groups, as well as attend its biannual meetings and an annual meeting of lay members.